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Associate Parliamentary Group on Skin (1997). An Investigation into the Adequacy of Service provision and Treatment for Patients with Skin Diseases in the UK. Associate Parliamentary Group on Skin (1999). Report on the enquiry into fraudulent practice in the Treatment of Skin Disease. Associate Parliamentary Group on Skin (2000). Report on the Enquiry into Skin Diseases in Elderly People. Associate Parliamentary Group on Skin (2001). Assessment of Best practice for Dermatology Service in Primary Care. All reports can be obtained from Portcullis Research 3/19 Holmbush Road London SW15 3LE For the Best Practice Report go to the address below and click on download report http://www.skincarecampaign.org/dcwgr.htm#report ^ back to top
The following is a selection of condition specific patient interest and support groups. ^ back to top Acne Acne Support Group, 1st Floor, Howard House, The Runway, South Ruislip, Middlesex, HA4 6SE. Reg. Charity No. 1026654. Telephone messaging service: 020 8841 4747. Email: alison@the-asg.demon.co.uk Website: http://www.m2w3.com/acne also http://www.stopspots.org/ Hairline International Hairline International, The Alopecia Patients' Society, Lyons Court, 1668 High Street, Knowle, West Midlands, B93 OLY. Reg. Charity No. 1056204. Tel: 01564 775281 Fax: 01564 782270. Website: http://www.hairlineinternational.com Eczema National Eczema Society, Hill House, Highgate Hill, London, N19 5NA. Reg. Charity No. 1009671. Tel: 020 7281 3553 Fax: 020 7281 6395. Eczema Information Line: 0870 241 3604 (1-4pm Mon-Fri). Website: http://www.eczema.org/ Herpes Herpes Viruses Association (SPHERE) and Shingles Support Society, 41 North Road, London, N7 9DP. Reg. Charity No. 291657. Tel: 020 7607 9661 (office and Minicom V) Tel: 020 7609 9061 (helpline - 24 hours access). Fax number available on request. Website: http://www.astrabis.co.uk/sites/herpesvirusesa/default.htm ^ back to top Tissue Viability Tissue Viability Society, Glanville Centre, Salisbury District Hospital, Salisbury, SP2 8BJ. Reg. Charity No. 1041915. Tel: 01722 336262 Ext. 4057. Fax: 01722 425253. Email: tvs@dial.pipex.com Web site: http://www.tvs.org.uk LUPUS LUPUS UK, St James House, Eastern Road, Romford, Essex, RMI 3NH. Reg. Charity No. 1051610 Tel: 01708 731251 (5 lines) and 24 hour Answerphone. Fax: 01708 731252. Lymphoedema Lymphoedema Support Network, St Luke's Crypt, Sydney Street, London, SW3 6NH. Reg. Charity No. 1018749. Tel: 020 7351 4480. (answerphone out of hours). Fax: 020 7349 9809. Email: adminlsn@lymphoedema.freeserve.co.uk Website: http://www.lymphoedema.org/lsn/ Neurofibromatosis Neurofibromatosis Association, 82 London Road, Kingston on Thames, Surrey, KT2 6PX. Reg. Charity No. 284653. Tel/Answerphone: 020 8547 1636. Fax: 020 8974 5601. Minicom: 020 8392 0184. Times: Monday-Friday: 9:00am - 5:00pm Email: nfa@zetnet.co.uk Website: http://www.nfa.zetnet.co.uk/ Psoriasis Psoriasis Association, Milton House, 7 Milton Street, Northampton, NN2 7JG. Reg. Charity No. 257414. Tel: 01604 711129. Fax: 01604 792894. Psoriatic Arthropathy Alliance, PO Box 111, St. Albans, Hertfordshire, AL2 3JQ. Reg. Charity No. 1051169. Tel/Fax: 01923 672837 (Telephone support is provided). Email: info@paalliance.org Website: http://www.paalliance.org ^ back to top The following are General Interest Groups and Patient Support The Cancer Research UK website (www.cancerresearchuk.org) is for anyone who wishes to know more about cancer or to play a part in our vision to cure cancer faster. On this site you can access information about specific cancers and how to reduce your risk. You will also find details about how to support our fundraising programme and how to make a donation. P.O. Box 123 Lincoln's Inn Fields London WC2A 3PX tel. 020 7242 0200 fax. 020 7269 3100 email: customerservices@cancer.org.uk CancerHelp UK (www.cancerhelp.org.uk) is a free information service about cancer and cancer care, written especially for patients and their families.It is written in a way that is easy to understand and includes a database of clinical trials.
Have a look at our SunSmart website http://www.cancerresearchuk.org/sunsmart/
for useful information on the dangers of sun damage, and what you
can do to protect yourself. Wessex Cancer Trust's Marc's Line, Marc's Line Resource Centre, Dermatology Treatment Centre, Level 3, Salisbury District Hospital, Salisbury, SP2 8BJ. Tel: 01722 415071. Website: http://www.wessexcancer.org/ (part of the Wessex Cancer Trust Cancer Information Network) Changing Faces 1 & 2 Junction Mews, Paddington, London W2 1PN Reg. Charity No. 1011222 Tel: 020 7706 4232 Fax: 020 7706 4234. Email: info@changingfaces.co.uk Website: http://www.changingfaces.co.uk Contact a Family 209-211 City Road, London, EC1V 1JN. Reg. Charity No. 284912 Tel: 020 7608 8700 Fax: 020 7608 8701 Minicom 020 7608 8702. Helpline 0808 808 3555, Freephone for parents and families (10am-4pm, Mon-Fri). Email: info@cafamily.org.uk Website: http://www.cafamily.org.uk (Puts families in touch who have similar rare conditions) Wound Care Society PO Box 170, Hartford, Huntingdon, PE29 1PL. Reg. Charity No. 1013304. Tel / Fax: 01480 434401. Email: wound.care.society@talk21.com Website: http://www.woundcaresociety.org (for leg ulcers and pressure sores) Skin Care Campaign Hill House Highgate Hill London N19 5NA The Skin Care Campaign (SCC) is an umbrella organisation representing the interests of all people with skin diseases in the UK. It is a subsidiary of the National Eczema Society, a registered charity. Reg. Charity No. 1009671 Wesite: http://skincarecampaign.org ^ back to top
Skin Camouflage network The King's Fund
The British Dermatological Nursing Group (BDNG) was established in 1989 to offer an independent speciality group for nurses and healthcare professionals with an interest in dermatology. The group was established within the associated members group of the British Association of Dermatologists (BAD) and benefits from sharing headquarters and administrative support with the BAD. The aims of the BDNG are to: Promote the development of the highest standard of care for the patient receiving dermatological care; Membership of the group is open to anyone interested in dermatological nursing upon application. Registered nurses from the UK may apply for ordinary membership, non-registered nurses, registered nurses from overseas and healthcare professionals may apply for associated membership (associate members are non-voting members of the BDNG). Candidates for membership of the group may work in primary of secondary care areas. Candidates who do not practice any dermatological nursing and all associate members should be proposed by a member of the Group from personal knowledge. All applications must be approved by the BDNG Executive Committee. Website - http://www.bdng.org.uk ^ back to top British Association of Dermatologists The main aims of the BAD are available on the web site. However to summarise BAD aims to stimulate appropriate research, publish, advise the government and other professional bodies and promote improvements in dermatological care. The web site is quite extensive so finding specific documents is not always straightforward, also some parts are password protected. The web site address is http://www.bad.org.uk/ However, the web site does provide links to many of the dermatology professional bodies. To find these on the web site click on Affiliated Groups. The site also provides links to the various condition specific patient support groups. See also Patient Interest/Support groups British Association of University Teachers of Dermatology (BAUTOD) The main function of BAUTOD is to take a special interest in teaching dermatology and to enhance the professional practice of dermatology. To access this site directly go to the BAD web site and click on affiliated groups. Cochrane Skin Group The group accepts reviews of skin care disease that may be of interest to health professionals and the public, it therefore includes some aspects of complementary and alternative skin care therapies. Other focuses of the group include delivery of health care and management of skin diseases. http://www.nottingham.ac.uk/~muzd/ International Skin Care Nursing Project International Skin Care Nursing Group (ISNG) The International Skin Care Nursing Project is a multi-faceted initiative involving key strands; the development of the ISNG and the support of a major World Health Organisation public health project. These activities involve development and research activity. The International Project Nurse (Skin Care), Rebecca Penzer, is responsible for the day to day operation of the project and its Advisory group is Chaired by Dr. Steven Ersser, both of whom are members of the above Skin Care Nursing Research & development Group. For more information refer to the following web site or contact the above address. http://www.soton.ac.uk/~isng/ ^ back to top International Foundation for Dermatology The INTERNATIONAL FOUNDATION FOR DERMATOLOGY (IFD) is a non-profit organisation whose principal mission is to improve dermatologic care in rural areas of developing countries. For more information refer to the following website: http://www.ifd.org/ or For further information contact: Chairman: International Foundation for Dermatology Professor Terence J Ryan, Oxford Centre for Healthcare Research & Development, Oxford Brookes University, 44 London Road, Headington OXFORD 0X3 7PD. Tel: 44(0)1865 485294 Fax: 44(0)1865 485297 e-mail: ryan@ermine.ox.ac.uk Skin Care Research & Development Group This group is based in the University of Southampton, School of Nursing and Midwifery and the main aim is to promote healthy skin through a programme of high quality research, practice development and education. For further details about this group contact: Sarah Newman Research Secretary School of Nursing and Midwifery University of Southampton Hampshire SO17 1BJ UK Tel +44 (0)2380 598226 Email: sjn2@soton.ac.uk ^ back to top For health professional dermatology resources Action on Dermatology Part of the National Patients Access Team. The Action on Dermatology aims to achieve improvements in access to services for patients. The programme aims to do this by identifying areas of best practice. There are currently 16 pilot sites looking at various aspects related to the delivery of dermatological services. For more information visit the action on web site at http://www.modernnhs.nhs.uk/scripts/default.asp?site_id=17&id=2712 Annotated Bibliography of the Dermatological Nursing Literature. Ersser S (ed), Buchanan, P., Bullis, S., Crowle, A., Dennis, H., Doherty, C., Jackson, K., Lawton, S., Penzer, R., Peters, J., Pringle, F., Ryan, T., Stone, L., Taylor, H., Thomas, A., & Van Onselen, J. 1998. Literature. Oxford Centre for Health and Development, Oxford Brookes University, Oxford. British Association of Dermatology Members Handbook 1999/2000. British Association of Dermatologists. Dermatology Online Resource List. To access this list go to http://www.moor.co.uk/f_aboutus.htm and then click on Web Links Dermatology on -line This site is specific for GP's and other doctors and allows them to obtain interactive advice on areas of concern regarding dermatological conditions. To access the service, go to: www.doctors.net.uk/dermatology. Users need to be registered with http://www.doctors.net.uk to access the service ^ back to top Moor Instruments Moor provides a useful list of dermatological web sites aimed at the professional and some patient related and disease specific sites. It provides direct links to some of the Dermatology Online Journals, Electronic Textbook of Dermatology and American Links. Again a useful place to start. http://www.moor.co.uk/ Omni OMNI (Organising Medical Networked Information) is a gateway to evaluated, quality Internet resources in health and medicine aimed at students, researchers, academics and practitioners in the health and medical sciences. The following web site is a link to alphabetical dermatology resources. This again is a good place to start although it is not comprehensive. http://omni.ac.uk/subject-listing/WR100.html Referral Advice: A guide to appropriate referral from general to specialist services. 2002. National Institute for Clinical Excellence. Also refer to http://www.nice.org.uk 11 The Strand, London WC2N 5HR Tel: 020 7766 9123 Skin Care Campaign. Skin Care Campaign Directory 2001/2002. Skin Care Campaign. http://www.skincarecampaign.org Society of Dermatological Physicians Assistants This society has collected together a resource list of dermatological related sites from around the world. Included in this list are professional groups (predominantly from the USA ) and disease specific sites. This represents a good starting point for dermatological resources. To access the online resource list go to: http://home.pacifier.com/~jomonroe/SDPA02.HTML ^ back to top Information reproduced by kind permission of The Skin Care Campaign. Click here to visit their website |
